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My cancer journey-update

Discussion in 'RayGator's Swamp Gas' started by DawgFanFromAlabam, Apr 28, 2024.

  1. DawgFanFromAlabam

    DawgFanFromAlabam GC Hall of Fame

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    Summary of my cancer journey

    8/22 - Diagnosed stage 2 liver cancer, 7cm tumor

    10/22- begin 3 weeks of 5 days a week external beam radiation ending 11/23

    3/23 - clear scan

    6/23 - clear scan

    9/23 - 2cm tumor found. Was part of original tumor just outside the margin of good tissue they took. Told it was microscopic and that’s why it didn’t get treated.

    10/23 - as can’t radiate but once per year, put on immunotherapy through 11/23 - sick as a dog after each treatment

    12/23 - radiation oncologist treating me dies unexpectedly. No other radonc will try treatment due to advancing cirrhosis

    1/24 - begin eval for transplant in ATL and Houston. Mayo in JAX on hold due to worsening health

    3/24 - tumor growth stops transplant treatment plans

    4/24 - start process to treat tumor with internal radiation

    5/24 - getting radiation later this week

    Along the way, it’s been rough…

    11/23 - hepatic encephalopathy (toxins not filtered by liver) lands me in ER incoherent. Treatment clears toxins and put on $3400 a month medication to help filter toxins

    12/23 - dehydrated so much can barely crawl. Week in hospital with cellulitis and staphylococcus infection in my bloodstream.

    1/24 - 2 weeks additional in home antibiotic injections 3 times a day

    Late 1/24 - back in hospital dehydrated and kidneys shutting down. Change in meds stops kidney issue. Begin weekly paracentheis treatments - needle then catheter through abdominal wall to drain ascetic fluid leaking from veins/arteries around liver. As fun as it sounds.

    2/24 - hospitalization with dehydration due to infected ascites fluid. 12/23 through 3/24 can’t eat or barely drink, lose 40 pounds

    3/24 - finally able to drink/eat a little. Hospitalized for 4 days for shortness of breath when lying down, new ailment is HPS (hepatic pulmonary syndrome) where veins in lung swell due to back pressure from cirrhotic liver. Put on at home O2, no cure except transplant

    What a long strange trip it’s been. Please pray for me and I get the transplant. Time is running low.
     
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  2. Gatorrick22

    Gatorrick22 GC Hall of Fame

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    Praying for you DawgFanFromAlabama... My brother had cirrhosis of the liver and it didn't go well for him. I hope you beat this...
     
    Last edited: Apr 28, 2024
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  3. Skink

    Skink GC Hall of Fame

    What an awful battle. Praying for the transplant for you
     
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  4. northgagator

    northgagator GC Hall of Fame

    WOW!

    You definitely ae not a quitter!

    Keep up the good fight.

    Prayers are on the way!
     
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  5. sqgator

    sqgator GC Legend

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    Hang in there, hope you beat this awful disease, praying for the transplant for you.
     
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  6. 06GATORS08

    06GATORS08 GC Hall of Fame

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    Thanks for sharing. I hope you get the transplant.
     
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  7. believer

    believer GC Hall of Fame

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    Praying for you brother
     
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  8. tommyvee

    tommyvee GC Hall of Fame

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    :emoji_pray:
     
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  9. iam4uf

    iam4uf GC Hall of Fame

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    :emoji_pray: Draw on the strength of knowing lots of us are pulling for you.
     
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  10. Bazza

    Bazza Moderator

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    :emoji_pray:
     
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  11. incoldblood

    incoldblood GC Hall of Fame

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    Prayers and best wishes for you Dawg. Hang in there.
     
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  12. INGATORSWETRUST

    INGATORSWETRUST GC Hall of Fame

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    Praying for you and family. Wishing you strength through your pain and hardship and improved health in the future
     
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  13. lizardbreath

    lizardbreath GC Hall of Fame

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    I can't say I ever expected to be "pulling for a Dawg" with all my heart. But here we are. Stay strong in your fight, you are not alone or uncared for. Very best wishes.
     
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  14. WindoverG8tr

    WindoverG8tr GC Hall of Fame

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    Praying for your healing. And peace of mind so you can maintain a strong and positive attitude to help you heal. Also praying for great medical wisdom for the team working with you.
     
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  15. GatorRider

    GatorRider GC Hall of Fame

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    Strong prayers sent in your name. Peace and strength be with you.
     
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  16. ThePerfesser

    ThePerfesser Sophomore

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    Thanks for sharing. Thats one of the toughest stretches of affliction I ever heard of so you must be one tough hombre. Praying for you in Jesus' name.
     
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  17. TrueGator

    TrueGator GC Hall of Fame

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    Prayers up Dawg. Keep the faith, brother. You can do this.
     
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  18. AgingGator

    AgingGator GC Hall of Fame

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    Prayers and best wishes to you Dawgfan. You’ve fought to long to give up. Keep fighting!
     
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  19. bperkins10

    bperkins10 GC Legend

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    Prayers sent for you DawgFan. Having gone through cancer recently, I understand the battle.
     
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  20. tripsright

    tripsright GC Legend

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    Thinking of you, Dawg.
    Stay positive.
     
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